Hydrocephalus Association
Bethesda, MD, — Todd Touchberry will spread awareness about hydrocephalus and his daughter’s journey by driving his 103-year-old Ford Model T from South Carolina to California starting November 17, 2023.
What is Hydrocephalus?
Hydrocephalus is a chronic, neurological condition caused by an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles, resulting in pressure on the brain.
It affects over 1 million Americans, ranging from infants and older children to young and middle-aged adults, as well as seniors.
There is currently no cure for hydrocephalus, but it can be treatable.
The Touchberry’s would do anything for their daughter, and raising awareness and funds for hydrocephalus research is at the top of the list. Nothing is too crazy or off-limits!
They will hit the road on 11/17/23, leaving from the East Coast in South Carolina and planning to cross the finish line on the West Coast in California, all within 13 days. Aiming to beat the existing 14-day record. This will be an action-packed trip full of many experiences to share. And a fantastic way to raise awareness across the country for hydrocephalus.
Their goal is to raise at least $ 10/mile and donate funds to assist with critical research to help those living with the condition and eventually find a cure.
There is no cure for hydrocephalus. The only known treatment is brain surgery. The most common surgical treatment for hydrocephalus is shunting the excess cerebrospinal fluid from the brain, which has one of the highest failure rates of any medical device on the market. There are approximately 10,000 pediatric hospital admissions for shunt malfunctions each year. Hydrocephalus and a shunt can mean a lifetime of multiple brain surgeries. Dozens of brain surgeries are common and 100 or more is not unheard of.
For more information on Coast to Coast for Hydrocephalus, visit: https://www.hydroassoc.org/coast-2-coast/
About the Hydrocephalus Association:
Founded in 1983 by parents of children with hydrocephalus, the Hydrocephalus Association has grown to become the nation’s largest and most widely respected organization dedicated to hydrocephalus. The Hydrocephalus Association began funding research in 2009. Since then, HA has committed over $ 13 million to research, making it the largest nonprofit, non-governmental funder of hydrocephalus research in the U.S. For more information, visit www.hydroassoc.org.
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